Baby Charlie's parents 'stripped of their rights' in battle for treatment

Kristopher Drake
July 14, 2017

The elderly and terminally ill, like Charlie, who require more care and are more costly to the system, will be the most likely to be denied care. Little Charlie is at the center of a legal and medical drama that has put parental rights and the "right to die" in direct opposition to one another.

Charlie suffers from mitochondrial depletion syndrome, a rare genetic disorder that has rendered him unable to breathe, eat or move on his own.

"A doctor in the USA thinks that there's a 10 percent chance that he could help improve Charlie Gard's condition and he 's offering to come to the United Kingdom if the court adjourns".

They have already lost battles in the High Court, Court of Appeal and Supreme Court in London.

He read: "We love him more than life itself".

Parents of Charlie Gard, Connie Yates and Chris Gard pose for the media ahead of delivering a petition with more than 350,000 signatures to Great Ormond Street Hospital in London, Sunday, July 9, 2017.

He said he had been told staff at Great Ormond Street Hospital in London were subjected to "vile" abuse and threats.

"Staff feel it is desperately unfair to Charlie... week after week knowing that every step they take for Charlie is against his welfare."

Earlier, Trump gave the parents new hope by offering help in a tweet, while the pope has insisted on the need to respect the wishes of the parents to "accompany and treat" their son to the very end.

On Monday the couple were given 48 hours to present new evidence as to why Charlie should receive nucleoside therapy in the United States for his mitochondrial depletion syndrome, a condition that causes progressive muscle weakness and brain damage.

"When are you going to start telling the truth?"

Mr Justice Francis has challenged the couple to produce dramatically new evidence that the therapy they want to try in the U.S. has a chance of working.

But the hospital requested a new hearing after receiving two letters - one from seven doctors and another from a solicitor representing Charlie's parents - claiming the chances of the treatment being successful were higher than previously thought.

He told Fox News: "Charlie is effectively being held as a captive". They [his parents] have been told they can't even take him home to die and they cannot fly him to America... Because of the laws under the Britsh National Health Service, Charlie's parents are not allowed to take their son to other doctors unless the hospital doctors give permission.

The treatment, known as nucleoside therapy, is not a cure. Independent medical experts agreed with our clinical team that this treatment would be unjustified. Commenting on the case, AUL CEO Catherine Glenn Foster said, "The medical evidence is consistently clear that Charlie deserves a chance at life. This is not an issue about money or resources, but absolutely about what is right for Charlie".

"It is unacceptable that Charlie's parents are being asked to prove that their son's life is still worth fighting for when it is their right as parents to pursue what they consider best for Charlie", said Foster.

"This is the best scientific data we have", he said, adding he was prepared to extrapolate the TK2 findings to Charlie's genetic deficiency.

Other reports by Ligue1talk

Discuss This Article